SiM – SEEDS OF HOPE 
SiM – SEEDS OF HOPE 
im 47 years old, a married 28 yr old man who weighs 170 lbs. currently in year 7 of extensive 5fu/cmf chemo (cytoxan, fluorouracil, chlorambucil) and its presently under control. my psa began showing at 3.5 but by late sept it had shot up to 12 or 13, due to an ejaculation. now its 19.5. considering surgery or radiation. cancer found by dre early jan, went to see dr. for biopsy of mass of tissue in left testicle, he said it wouldnt hurt, i went in and the biopsy came out positive for recurrence of pca.
what a wealth of knowledge and help – you guys are awesome.
psa was 2.4 in march 2011, i then had an mri which showed a 1mm nodule in my prostate, which a biopsy confirmed to be t2an0m0. the surgeon called my oncologist and they decided to just continue monitoring. during the six week course of radiation i did not experience any major side effects. the last 6 months have been non stop urologist visits; one month for follow up; one month for a new dose of radiation; one month for further follow up. this has been ongoing for over 6 months now. so far the only good news is that the biopsy from march showed the prostate cancer to be non aggressive (i.e. it hasn’t grown). i have been reminded that it is important to have regular psa tests as that’s our way of measuring the effectiveness of treatment.
i also have a diagnosis of congestive heart failure and as a consequence receive an emergency defibrillator and an implanted pacemaker. so far the result is that i take 6 medications to keep my heart rate and rhythm stable, and for blood pressure and shortness of breath and chest pain. thankfully my strength is returning; my doctor is hoping that i can resume “normal” activities in about 6 weeks.
my oncologist’s current opinion is that they will continue to monitor me every 3 months for another 12-18 months and a pet scan would be performed in 6 months to see if there is any metastasis. i have the feeling that we’re just getting started now!
i look forward to a continued healthy relationship with my oncologist and my local urologist for another few years.
looking forward to many more visits to a medical website such as this and reading all the answers to the questions that i will be asking my local doctors.. :)
thank you. hang in there with me – i think you’ll really find it helpful. i’m going to go back to my personal page, to the sbrt website, and bookmark everything for future reference. i am so thankful that there are people out there who are volunteering their time to help fellow men like myself as i find this to be a most helpful and supportive website. good luck.
nicole i just finished my year of chemo and and 2 yrs of radiation. i am thankful to the docs i had to have them. it was the worst thing ever but they gave me 2yrs to prepare. i have decided since my rp it was the right time to go, i am 55 and don’t want to die. i decided to do my own hormone shots because the pharmacy said i could not use the “drug” they use. which is a patch. i did it myself every 2 weeks with a needle. it was very painful and it was messy. i did it in my bathtub and it was so fun. i have been on testosterone for 5 yrs now. i am not getting any more tumor. i will have my next blood test in 2 weeks, the blood work showed i am stable. my psa went from 24 to 0.3 last month. if my last blood work before my rp was negative i would be happy. i am not happy though i am hopeful. i have a 2 yr old granddaughter and a 1 yr old son. i miss them. i had 2 failed attempts at my last rp and i did not know it. the first time i had negative needle biopsy and the 2nd time it was a positive one. i have lived with it for 8 years now. i don’t want to have to wait another 8 years to see if it is a hot or cold spot. i hope i don’t have to be a widow with 2 kiddos in high school. i had my first chemo in september and i have had very good days. they have been rare. i am not very good at taking drugs. i think that the chemo helps. i know it has helped the progression of the cancer. i guess that’s the only way to know for sure. i am not on any chemo now. i have decided not to look at my rp until i finish my 2 yr treatment. i have an appointment in february and after that i have no appointments unless something happens. it is a done deal. i have been told that if i get another rp it is not a good thing and i will have to live with the results. i will be going to my rp on friday. wish me luck. i am nervous. nicole